Sign the SBSK Petition

This is very dear to my heart and I implore my friends to sign this petition.

This couple is so very special and has been doing such amazing work.  They have been creating interviews with people with all types of special needs.  Showing the world what amazing people they are.  Now YouTube has blocked there comment sections.  They allow videos of violence, nudity and even Momo (until the news media brought it to the public) but they choose to block something that could make us, as a society, kinder and more empathetic.  They block something positive and nurturing and allows ... well you all know what they allow.

Please sign the petition at bit.ly/SBSKpetition.
#UnsilenceSBSK and show your support for two people that have dedicated so much to make us better.

Spiritual and Inspirational Sunday - Special People

My daughter has special needs.  Over the years I have realized that she has taught me so much more than I could ever teach her, she has helped me develope into a better person and showed me what life is really about.  She and other's with disibilities are truly special. 

When I see FB posts, like the following from Dan Foeking, I am completely touched.  I hope that more people will realize that it just takes a little TLC and they can be someone's Hero.  Blessings to the cashier that showed such patience and Blessings to all of those that care for and have cared about someone with special needs.

Near Round Lake Park, IL

"I took this picture at Culver's in Mundelein and I hope this employee doesn't mind that I post this, but I wanted to share an awesome story. The customer he is speaking with is a special needs man, and I watched and listened from my booth as he patiently and politely spent about 15 minutes answering all of his questions. He asked about the menu, prices, and even this employee even went as far as t...o retrieve a detailed menu so that he could explain some of the nutritional facts. This employee could not have been more polite and at no time appeared rushed, even though other customers were waiting in line. I wish I could have gotten his name, but he was not wearing a name tag. I did go on to the Culver's website and left my comments, so I hope he gets the recognition he definitely deserves. Sir, I tip my hat to you and pray more people follow your lead in life. Thank you. Feel free to share this, maybe it will make its way back to this employee!" ~Dan Foeking

Spiritual and Inspirational Sunday

I seen this on FaceBook today and it made my heart break; the quote reminded me of how hard we (Ashley, my son and me) had to struggle just to have a little of what "normal" kids and families took for granted.

At times it felt as if we didn't have the right to have dreams for her, want peace and happiness in our family, and even as little a thing as to laugh.  So many times people made comments or seemed out right disgusted that I couldn't accept our "fate" quietly.  I want the world to know how much people with special needs can contribute to our society and to the lives of those that love them and work with them.  They are true blessings.

To all of those teachers, caregivers, etc. that worked with Ashley and saw her for the beautiful person she is; thank you from the bottom of my heart.  There were several people that truly had her best interest in mind and worked very hard to help her. 

Please support families that have children with special needs and also the caregivers.  Most of us had more than our fair share of disappointments, sadness and trials.  Often there are multiple illnesses that are life threatening and so many more obstacles than the average kid has just to help them succeed in life.   Parents that have special needs children didn't commit some great sin; they were blessed by God because He felt they could be strong enough to handle the extra challenges.

Despite these challenges, raising someone that has special needs has made me stronger, wiser and a much better person than if I hadn't.  My children taught me so much more than anyone could have ever taught me about patience, love, and true happiness.  When I prayed for wisdom God sent me Ashley. 

Wandering Wednesday - Saint Augustine Florida

St.Augustine Florida is a popular tourist town that many people will excitedly exclaim "oh I've been there, I love that place" if brought up in conversation.  It has a very very rich Spanish history and the buildings to prove it.  I absolutely love St. Augustine but for a more personal reason.

In 2002 my daughter, Ashley, turned 13 years old but before that, since about 8 years old, she would have hundreds of drop seizures every day; all day and all night.  While drop seizures are not as well know as grand mall seizures I honestly think that hers were more disruptive because it had caused at least an ER visit every week with something needing to get stitched up.  Unfortunately for her she spent a lot of time in wheel chairs and scooting around to get things so that she wouldn't fall down and get severely injured.  If you can imagine how hard it was to see her want to walk, run and play like any normal kid and she had the ability to do so, but she simply could not because no sooner than she got up she would collapse to the ground.

 During those tough years I almost lost her on 4 different occasions because, for whatever reason, she would have a few episodes of seizures that would cause her to completely stop being able to take in a breath.  First responders would have to bag her and I would watch helplessly while she was being rescued.  Just like many people, our family was going through a time where we had a lot of stress.  I could go on to many details of the struggles but it is much too long of a story.

Wally and Ashley (before Ashley started to have drop seizures)

 What was special about 2002 was that after trying special diets, every medication combination under the sun and all kinds of other treatments she was going to have brain surgery, a complete corpus callosotomy.  I was terrified that if we didn't do it she would have no quality of life and may die and if we did do it she may have no quality of life and may die.  Fun times.  So in light of never having had taken a real family trip during my poor children's entire life and this may be my last chance, I decided to take them to Disney World and on the way a stop in Saint Augustine.  I had no money but when a mother is feeling the way I did you find a way to make things happen and with her neurologist's blessing we were on our way. 

Ashley's 13th Birthday

 I had never been to Florida or really too far out of the Midwest so this was exciting but scary to take Ashley so far away from the security of home and doctors.  At this point she was in the wheel chair 90% of the time, so we made special little trailer for it and strapped it on to the back of our Green '99 Mercury Mystique that Ashley named Green Eggs and Ham. We were completely packed in with a weeks worth of supplies and we hit I90 ready for our 1700 mile trip.  Just outside of Maustin Wisconsin I heard my son, Wally, say "Are we there yet?"  I knew it was going to be a long ride.

After a long ride we finally made it to St. Augustine and found our hotel on the beach.  It was the first time that I had seen the ocean this was such a moving moment for me.  I had always dreamed of travelling, especially to the ocean shores, and for a long time it looked like I was never going to get a chance to.  As I brought the kids out to the beach for the first time I noticed that I had not planned for off roading with Ashley's wheel chair.  No matter how hard I tried I could not maneuver her chair through the sand.  So I took a deep breath, folded it up and put it along side the rail.  Then taking Ashley's hand we ventured out to the water's edge and she fell.  But to my surprise she did not get hurt and there was no blood or no broken stitches from the last injury, she just looked shocked and got up. 

The sand was soft enough that she wouldn't get so banged up if she did fall.  It was the first time in years where Ashley could actually play like a normal kid and I didn't have to feel like I was a cat ready to spring in action at any sign of falling.  The entire time that we were on the beach Ashley was free.  Her brother and her spent many hours jumping waves and discovering treasures along the shore.  When it came time to leave St Augustine they begged to stay longer.  Needless to say once we arrived in Disney World they were very happy we left but that moment of peace in Saint Augustine will always be a treasured memory.

Ashley and Wally (Ashley standing safely on her own with her brother was a special occassion)

 It is amazing to look back and see all of the miracles that God provided for us over the years and during our trip He certainly gave us many. Ashley had very few seizures and the ones she did have were more manageable then normal.  It was a trip that will always out shine any other trip in my life.  Ashley had the surgery succesfully reducing her seizures significantly so that she could leave her wheel chair behind.  She has good days and bad days where she may need to use one for power shopping through a store, but over all life is much better for her.  Ashley is grown up and happily lives with other adults with special needs.  Wally is also an adult and has was just married to a beautiful Utah girl. 

Not only did God give me and my children the strength to get through a very tough time He gave us great beauty and happiness amid the stress and tourmoil.  One of those blessings was found on the shores of Saint Augustine.

Disney World Heals All Broken Hearts!

It was nice to see them smile and to be able to act like kids

Ashley's High School Graduation